Adults and children attention deficit hyperactivity disorder (ADHD) and Autism support and services provision review

Earlier in the year (2019) the CCG commissioned an independent review of ADHD and autism services (all ages).  As part of the review, stakeholders, carers and service users were consulted on the current provision of services, gaps in current provision and were asked to help design what good would look like for future services. 

The review

As a result of the review, a full review report was drafted, a summary version report and an easy read version of the report have been produced.

The report shows that there are inconsistencies in service provision and access which should be addressed. The report also indicated there is a greater need to focus services on those with ADHD as the numbers are significantly higher and proportionately we have a smaller provision of services for service users.

The output of the Attain review was received in May 2019 and included:

  1. A review of the services
  2. A blueprint for autism and ADHD services and support in East Berkshire, and it’s wider region. The principles of this ‘Blueprint’ are early help, collaboration, system navigation, communication and environment.
  3. An implementation framework

Useful downloads

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Full report

Download
Appendices

Appendicies

Download
Summary

Summary Report

Download
Easyread

Easy Read version of the review report

Download

Next steps

On 15 October 2019, a workshop event was held to communicate the findings of the review carried out by Attain. The aim of the workshop was to:

  • Share the findings of the report
  • Highlight what good looks like in ADHD and Autism service provision
  • Share the short term steps we are taking to improve things
  • Provide an opportunity for attendees to comment on the future service model

50 people attended this meeting, including parent and carers of children with Autism/ADHD, young people with autism/ADHD, community and voluntary groups, health, education and local authority representatives.

During the workshop, attendees had an opportunity to feedback on the blueprint model. Download the presentation below to find out more about the outputs from the workshop.

Meeting
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15 October workshop pack and outputs

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Background: Why are we reviewing this review?

Autism support and services are currently provided by multiple organisations ranging from local authorities, Berkshire Health Care Trust and the voluntary sector.  Whilst it is positive that there are a range of services, due to the way the services have developed and been funded it has resulted in a fragmented offer. In addition to this, there is an increasing demand on services which has resulted in creating pressures with certain aspects of the provision E.G:

  • Services users are affected by long waiting times for diagnosis
  • There is also a lack of co-ordination and support pre-diagnosis

Nationally around 66% of children and 92% of adults are living with ADHD  and 60% of adults living with autism are undiagnosed (age 40+).

What engagement was done during the service review phase?

Engagement To Date

As part of the review, stakeholders, carers and service users were consulted on the current provision of services, gaps in current provision and were asked to help design what good would look like for future services.

The engagement included a survey, a number of sessions with people using the current services, parents and carers of those accessing the services and people who work within the services to help develop and design what good would look like. A number of workshops were also arranged across East Berkshire to encourage anyone who was interested in the service review to share their views.

Following the engagement, a full report and a summary report was developed which contained a series of recommendations.

Next Steps